Data Exchange between Patient and Care Organisations in Scotland >

SUPERVISOR: Jay Bradley

RESEARCH QUESTION:

How can Scotland build personal health records that support citizen and statutory health care needs? 

RESEARCH CONTEXT / INQUIRY:

Utilising patient held data services removes the complex requirements inherent in data exchange between many possibly large and complex statutory organisations and instead places the citizen at the centre of their own healthcare. In this way citizens may better understand their heath and care needs by curating their own health and care records and managing the way in which it is shared with statutory, 3rd-sector and informal services.

INNOVATION CHALLENGE:

The acquisition, managing, sharing and recall of patient held information can improve care services [1]. Data exchange can be viewed from the point of view of the citizen receiving care: their need to communicate what is important to them in their care [2] [3]; what is normal health for them; what care is being provided for them, when, how and by whom; etc., or the point of view of the care provider: their need to understand the citizen and communicate and coordinate care provision. The use of patient held data could be specifically beneficial in the integration of health and care services in Scotland. Furthermore, the use of patient held data opens up new opportunities such as improved stratified medicine [4]. This research aims to co-design new digital services with health and care organisations and patients that are built around patient held data records.

  

1. Don Detmer, Meryl Bloomrosen, Brian Raymond and Paul Tang. Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care. BMC Medical Informatics and Decision Making. https://doi.org/10.1186/1472-6947-8-45

2. Teal, G., French, T., Bradley, J. 2017. Backpack. https://www.futurehealthandwellbeing.org/backpack/

3. Teal, G. 2018. The Modern Outpatient. https://www.futurehealthandwellbeing.org/modern-outpatients/

4. Kostkova Patty, Brewer Helen, de Lusignan Simon, Fottrell Edward, Goldacre Ben, Hart Graham, Koczan Phil, Knight Peter, Marsolier Corinne, McKendry Rachel A., Ross Emma, Sasse Angela, Sullivan Ralph, Chaytor Sarah, Stevenson Olivia, Velho Raquel, Tooke John. 2016. Who Owns the Data? Open Data for Healthcare. Frontiers in Public Health Volume 4. https://www.frontiersin.org/article/10.3389/fpubh.2016.00007